Tag Archives: MS

Relapse-Remitting Multiple Sclerosis: The New Diagnosis

Well, almost 9 years have gone by since I was diagnosed with Clinically Isolated Multiple Sclerosis. After having my first large attack, I am officially in the relapse remitting group. I’ve had symptoms on and off over the years if I get overheated, but have never had a full-blown flare since my diagnosis.

My first MS flare since my diagnosis started back in February of 2023. It has been similar to my first attack that led to my diagnosis back in 2014. However, this flare lasted a lot longer than I expected and I’ve had new symptoms that I’ve never had before. After 5 months of trying to take care of myself the way that I usually do I finally asked for a steroid treatment in June of 2023 to end the attack.

My Symptoms

This time the flare affected the right side of my body as it did initially. My body started to go numb and tingling from my right hand all the way down to my right foot. However, this time the numbness also spread across my abdomen to the left side. I also had Lhermitte’s sign again, so every time I looked down what felt like electric shocks would go down my spine. And last but not least, I had a few weird instances where I would put on a sweater and my forearms from the elbow to my hand would go completely numb and I couldn’t use them. For me, that was the scariest, because the fear of losing the ability to use my arms has been hard to contend with.

My Mind Freaked-Out

What if I lose all use of my arms?

What if I lose all use of my legs?

What if I end up in a wheelchair?

What if? What if? What if? What if?

I thankfully have a really great husband who keeps me grounded in reality.

“You haven’t lost all use of your arms.”

“You haven’t lost all use of your legs.”

“If you do, I’ll take care of you.”

“Stop with the What ifs! They don’t serve you.”

Sometimes I need a kick in the pants to get my monkey brain out of doom and gloom spiralling.

And so began the exploration into why my health sidekick decided to become known again in my body. I began new research and doubled down on the 6 pillars of health to take care of myself and looked into new ways as well.

It’s been a frustrating 5 months and I’ve wanted to share and process things on the blog but I was in the thick of it and didn’t want to share anything I hadn’t properly processed or learned.

Struggling With My Overall Health

I shared that back in April of 2022 I had been dealing with restoring my liver health. Unfortunately, after 2 rounds of TUDCA, I went off of the supplement and my liver enzymes went back up. After making some dietary changes my liver enzymes reduced to healthy levels over the summer of 2022. I went in for routine bloodwork in March of 2023 and my liver enzymes had shot back up. I decided to take 2 supplements that I know are supportive for my liver; dandelion detox supplement and Liver SAP. I was also drinking different supportive teas for liver health in the evenings and getting back into a routine of castor oil packs every other night. This seemed to help and brought my liver enzymes back down by May 2023. Needless to say, something is going on with my liver and I’ve been trying to figure that out alongside dealing with this MS attack. It’s been a lot on the body and mind which has caused me a lot of stress. Let’s talk about stress…

Stress

I’ve gone through all the reasons why I might be having a flare and it kept coming back over and over again to stress. I had originally read “When The Body Says No” where I experienced an epiphany that the stress of calling off a wedding and leaving a toxic relationship in 2012 was a huge catalyst to my body becoming confused and me developing MS (which I was genetically prone to in addition to having contracted EBV when I was younger – more on that later). It was exactly 2.5 years from that stressful time in my life to the time of my diagnosis. Cue 2020, pregnant with twins, a plandemic, giving birth to twins, hemorrhaging, PTSD from birth trauma, postpartum depression and anxiety, being ostracized from society, not having community support, and the list goes on. And then 2.5 years after, I’m experiencing my first flare in 9 years. So my inability to process stress or just the build-up of stress contributing to this attack makes sense. The stress of the last 2.5 years has been a lot. So I’m giving myself grace and know that it’s going to take a while for me to take care of my nervous system and learn how to re-regulate again. Ok, let’s go back to EBV…

EBV

Alongside liver health, and managing my stress I also dove into the research around EBV which started surfacing and making itself known to me. In January of 2022, the “Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis” was published on Science.org. The link between having EBV earlier in your life and it how it is linked as a causation for MS blew my mind. “They” had finally figured out a key trigger. I still believe it’s a multitude of different factors that will contribute to someone developing MS since not everyone with EBV has MS, but now we know a little bit more about why T cells in MSers’ bodies are confused when they encounter B cells with EBV in them.

And thus began my research into EBV, EBV reactivation and if I could get rid of EBV in my body naturally.

I say naturally because, after one month of the MS flare, I decided to contact my family doctor and the MS Clinic at the Ottawa hospital to ask for steroid treatment to halt my attack. This meant brand new MRI scans and meeting a new neurologist. I will say that the new neurologist was great and really pleasant to talk to but immediately started pushing one of the latest disease-modifying treatments (DMTs) on me. With the advancement in science, the DMT no longer affects your entire immune system but simply acts on eradicating B Cells in your body. The ones where EBV lies dormant in. However, I’m still not sold on the drug and am currently weighing benefit vs. risk. And as I have functioned for the last 9 years successfully always considering natural remedies before something synthetic.

During this time my frustration with Naturopaths also began. I have always been a huge fan of them in the past and have always sought out their help before conventional doctors. I had to start working with a new Naturopath when we moved back to Ontario from BC in 2021 since my former Naturopath had decided to specialize in fertility. I began seeing one at BioHeal Ottawa and received a few recommendations on supporting my liver health. She was the one that had recommended TUDCA so I went back in to see her to discuss if I could naturally get rid of EBV in my body. I was put on a few tinctures and sent on my way. However, something didn’t feel right. I was simply being put on more supplements and I didn’t feel like they were addressing the root problems in my body. I also felt very rushed and dismissed in my last appointment with them.

I was battling with a lot of exhaustion, depression, and a lack of motivation and energy during the summer of 2022. So I decided to start working with a nutritionist who was talking about things like iron overload in the body and how it stresses the liver. Some light bulbs started to go off for me since I had received iron transfusions after giving birth to the twins. And I thought that maybe my liver hadn’t been able to handle the extra iron and was protesting.

The nutritionist was successful in helping me combat exhaustion and depression but had also urged me to go off of my vitamin D supplementation and had put me on a desiccated liver supplementation which another naturopath had questioned if I should be on based on the iron overload issue in my body.

I decided to go back to a clinic that I had been at before and started seeing a new Naturopath. After the initial 90 min intake appointment I received a bunch of recommendations I was already doing and one new supplement. So I went on that supplement and then found out I shouldn’t be on it long-term.

Thus began my search for another Naturopath. And this time after the initial 90 min intake appointment I received no information and was told I needed to book another appointment to receive any recommendations or a protocol. I had since reported that Naturopath to the Ontario college since I truly have never encountered any Naturopath who works that way.

I have yet to find a Canadian Naturopath who specializes in EBV and EBV reactivation. When seeking support and help from my IG followers, someone mentioned I should look into Dr. Kasey Holland and while going through her website and profile I discovered bits and pieces of information that led me towards new research. She mentioned that there could be several things that contribute to an EBV reactivation such as dealing with parasites or mould. More on that later…

Parasites

So after diving into EBV information with Dr. Holland and seeing an IG reel from the_detoxmama showing a video with Dr. Lee Merritt talking about autopsies on MS parasites showing a prevalence of parasites in the body… I decided to dive down the wormhole of MS lesions in the brain actually being caused by parasites.

Here are several references for you to look into as well.

LDN Research Trust and F1000Research and Dr. Lee Merritt: found that in a recent autopsy study, 10 out of 10 patients had nematode small worms in the brain. Thus began the line of questioning: Are the lesions in my brain caused by inflammation or parasites?

After months and months of frustration with practitioners and naturopaths, I’ve decided to take matters into my own hands with guidance from Melissa Ramos for Sexy Food Therapy. I’ve registered for her Sexy Autoimmune Academy and will be doing an intensive GI-map test to see if we can discover parasites in my stool. If that’s the case, then I’ll be doing a parasite cleanse to support my body in getting rid of them as my next step.

Mould

Additionally, I’ve been diving into research around mould exposure causing EBV to be re-activated as well. So since I know that I’m positive for EBV I’d like to understand if that is also potentially causing this recent flare. I’ll give you an update once I’ve figured out the testing and share the results.

Lifestyle Routines

There are a few things that I’m really good at. Creating lifestyle routines that work for me is one of them. And I know I needed to get strict with some lifestyle routines to support my body in getting out of this flare. However, breaking habits that don’t serve me well is definitely a struggle.

While I’ve been really good at waking up at 5 am, tongue scraping, oil pulling, meditating, journaling, drinking lemon water with a pinch of salt, eating a meat stick for protein intake before working out, getting in a morning workout, showering, doing a facial massage all before my first cup of coffee. I’m also really, really good at staying up just a bit too late watching trash TV on my phone or in our bedroom.

My evening routine has really suffered over the last few years. I find myself desperate to escape into TV which really doesn’t serve me and I’m still in the process of undoing these bad habits.

So in the last month I’m being religious about my evening routine:

  1. Having an Epsom Salt bath with added Boron 2 – 3 times a week (I’m deficient in Boron so I’m adding a bit of Borax powder to my baths)
  2. Head into the Infrared Sauna (dry brush before w/ essential oils) 2 – 3 times a week
  3. Hot Yoga one evening a week, then a cold shower
  4. Date Night one evening a week

Other things to note:

  • Lights off at the latest by 9:30 pm
  • Installed a timer on our modem/router so wifi turns off at 9:30 pm (that way I don’t have an excuse to still watch TV later)

Vitamin D

Last but not least, we know that a vitamin D deficiency is linked to those who live with MS. Unfortunately, the data is not conclusive around causation but there is correlation to MS flares and low vitamin D. After working with the nutritionist last summer she had urged me to go off of my Vitamin D supplementation. I have no idea if that was a contributing factor in the flare. Since February of 2023 I’ve been tanning 3 times a week to produce Vitamin D in my body. And now that it’s nice out I’m trying to get at least 1 – 2 hours outside during the day. I’ll use the D Minder app to track my time and based on the sun’s position it will calculate how many IUs of Vitamin D I’ll be able to produce based on the sun’s presence.

That all being said there is a lot going on. There are so many puzzle pieces I’m trying to figure out lately and it’s been taking a toll on my mental and physical health. I’m finally ready to share where I’m at as always to help anyone else in my position and also use this blog as a form of therapy for myself as I process everything that’s going on. I’ll keep you updated as I move along this healing journey.

Book Review: The LDN Book

Synopsis on Kobo.com

Could a little-known drug really revolutionize treatment for autoimmune diseases, cancer, depression, and more?

Low Dose Naltrexone (LDN) holds the potential to help millions of people suffering from various autoimmune diseases and cancers, and even autism, chronic fatigue, and depression, find relief. Administered off-label in small daily doses (0.5 to 4.5 mg), this generic drug is extremely affordable and presents few known side effects.

So why has it languished in relative medical obscurity?

The LDN Book explains:

  • The drug’s origins
  • Its primary mechanism
  • The latest research from practicing physicians and pharmacists

Compiled by Linda Elsegood of The LDN Research Trust—the world’s largest LDN charity organization with over 19,000 members worldwide—the book features ten chapters contributed by medical professionals on LDN’s efficacy and two patient-friendly appendices.

The LDN Book is a comprehensive resource for doctors, pharmacists, and patients who want to learn more about how LDN is helping people now, and a clarion call for further research that could help millions more.

What I Thought:

I really appreciated how this book was structured. While I didn’t read the whole thing, I did read the Introduction, Chapter One: The History and Pharmacology of LDN, and Chapter Two: Multiple Sclerosis and Lupus.

There are other chapters on Inflammatory Bowel Disease, Chronic Fatigue Syndrome, Fibromyalgia, Thyroid Disorders, Restless Legs Syndrome, Depression, Autism Spectrum Disorder, and Cancer. I may actually read the chapters on Depression and Cancer at a later date but I only had a few hours to spare this past weekend and wanted to make the most of the education I’m seeking.

I sought out this book as I am currently dealing with my first MS flare since my diagnosis in 2014. I’ve heard about LDN but hadn’t thought about it for my treatment. As I dive back into the world of MS research I wanted to see if this would be a viable option for me.

After reading this book, and consulting with a nurse practitioner I feel knowledgeable enough to want to take LDN. My only concern is that it is yet another drug/supplement that you have to be on long-term that doesn’t actually address the root cause of the disease and the flare-ups. However, I do believe it to be a great option for treatment while you figure out how else to create vibrancy in the body.

Building & ReBuilding a Health Care Team

I talk about how MS is a blessing in my life since my diagnosis in December of 2014. I’ve even gone as far as saying I’m grateful for the autoimmune disease because it’s taught me how to take different care of myself now so that I can thrive. One of the biggest challenges I’ve faced is building and rebuilding a health care team.

When I was first diagnosed I remember tackling my health care like it was a new side hustle in my life. I’d get up early to research and read articles. I’d come home from work and dive my nose back into books before going to bed. Building my healthcare team at the time didn’t seem that daunting. It flowed with ease.

When I met the love of my life, Mike, in October 2015, we then started dating in January 2016. I quit my job in Toronto and moved to Ottawa at the end of March 2016. I had to start fresh in my hometown city. I had to rebuild my health care team and I didn’t have the slightest idea how hard it would be.

So I’m happy to say I’ve experienced ease where it just flowed and I’ve experienced frustration and tears so from both perspectives I can write this blog post. Whether you have an autoimmune disease or you care about your proactive health and the team that you surround yourself with this post will hopefully serve you.

Toronto Health Care Team Members I’ll Be Leaving

Family Doctor

My first health care team member was my family doctor. I had luckily found her early when I moved to Toronto after University. I moved to Toronto in 2005 after graduating from McMaster and one of my friends let me know her doctor was taking new patients. I lucked out with Dr. Segal. Over the years, she was courteous and quick with appointments but I never felt rushed or not listened to. After my MS diagnosis, I intuitively decided to start taking care of myself holistically. Reading about conventional and alternative medicine to ensure I was receiving well-rounded care. One of the first things I asked her was to do blood work so we could see where all my vitamin & mineral levels were. This is where we discovered that I had a Vitamin D deficiency at the time of diagnosis. She would print out my lab work for me and I’d take it home and put it in my MS binder so that I could show other practitioners like my Naturopath. She was always open-minded, non-judgemental and always helpful. I really lucked out with her and miss her care so much as I’ve never found something similar in Ottawa.

Naturopath

I had been seeing a Naturopath for years before my MS diagnosis who actually worked in a clinic where the doctor would requisition my lab work for me. However, I believe Ontario Health was cracking down on this so I had to shift and get my family doctor to do this. This wasn’t hard so at the time I decided to shop for a new naturopath who had experience with MS patients. This is when I found Dr. Rachel Corradetti. I’ve written about her before. She was the one who challenged me to stop doing so many things. At the time of diagnosis she was actually offering in-home consultations. So shortly after the diagnosis, she came to my condo and we did the intake interview and reviewed everything we could think of. We talked about a few lifestyle changes and she gave me my first supplement protocol.

Registered Holistic Nutritionist

Because of the reading I had been doing after my diagnosis, I knew my digestive health, irritable bowel syndrome, gut health might be an issue. At this time I didn’t truly understand the link between our gut health and autoimmunity. Because I had announced my diagnosis publicly on social media I received the recommendation to consult with Chantal Houde who is an RHN who also lives with multiple sclerosis. I thought why not and booked an online consultation with her. This is where I learned about leaky gut and the autoimmune paleo protocol. I was able to continue my research on gut health and had a few easy tips I could incorporate into my meal planning.

Functional Medicine Doctor

Because I was in such a learning phase while in Toronto I discovered the concept of functional medicine. I researched different practitioners and landed on one in Yorkville. While I didn’t love my experience with this practitioner we did a test for leaky gut to discover if I had it, and if I did, I had healed it. We also did a micronutrient test, which was expensive but really informative. We were able to optimize my supplement protocol from those tests. I also learned from him that I was dealing with adrenal fatigue. This was after my year of doing over 20 races in 2015. I was then able to address this once I moved to Ottawa.

Therapist

I’ve never shared publicly my experience of seeing a psychotherapist in Toronto. I went to see one after my diagnosis at a friend’s recommendation as I was having a really hard time dating and a lot of pain points were coming up for me again from the toxic relationship I had chosen to be in for several years before my diagnosis. I learned a lot in that time about how I think, what stories I had created in my mind and how I was processing relationships in this world. After reading “When the Body Says No” and understanding the mental health aspect that is associated with disease I thought this was an amazing addition to my health care team.

Acupuncturist

I was originally seeing an acupuncturist who came recommended by a friend for my athletic injuries. I was training for obstacle course races before and after my diagnosis and I remember going to my acupuncturist one day for sports injury healing. He asked me “When do you plan on getting married and having babies”. Which left me in a puddle of tears on his table and googling acupuncturists downtown. I was looking for someone much closer to my office that I could go to on lunch breaks or on my way home from the office. This is when I added Amrit Singh to my team. This was also before she blew up on social media as a sought-after cosmetic acupuncturist. She helped me discover through her TCM training that despite eating healthy and many foods I thought were ok on the Wahl’s Protocol I wasn’t able to digest the food and absorb the nutrients because of my timing of intake and intaking raw vegetables vs. cooked ones. She all but helped eliminate digestive problems for me and her tips I still implement to this day. Tips such as using warming spices in my morning smoothies vs. a green smoothie.

Ottawa Health Care Team Members I Found

Family Doctor

As I write this blog I have never found a family doctor as amazing as my Toronto one. It’s been a constant source of stress and tears for me. I even left an appointment last night in tears. My husband knows that he needs to provide full emotional support on days I have a doctor’s appointment. I need to just spend time looking for a new practitioner but it is definitely a full-time job in itself.

Functional Medicine Doctor

Finding a functional medicine doctor started out wonky for me in Ottawa. I had found a doctor off of google who seemed to be amazing. She had a great website, a podcast, and books so I thought this would be great! While I had one great experience with her treating some bacteria found in a stool test I had taken before leaving Ottawa. I got really frustrated with her because she charged me for a naturopath fee but as a family doctor, I also thought I could talk to her about all my issues. From there I found out she wanted me to book an appointment per issue as she is also an MD and was billing through our provincial health care. She also brought up new issues like telling me I had Pyroluria without treating the issues I had come to see her for. I remember specifically letting her know that I wanted to solve for painful periods but since I talked about anxiety in the intake form she wanted to solve for Pyroluria. She wanted me to do an expensive test which I passed on because my research showed it could have just been a nutrient deficiency which I already needed to supplement for. I also decided to address my anxiety and panic attacks with my Ottawa psychotherapist and reflexologist. After finding my new functional medicine doctor she actually took me off one of the supplements I had been taking for Pyroluria because I was now over-sufficient in B6.

My new functional doctor is going on mat leave the month that I write this blog so I’m going to have to fend for myself for a year. However, I’ve never felt more empowered or on the right track. When I moved to Ottawa I joined an AIP Ottawa FB group to find out where people were shopping for food and local information. From this group, I found out that many of the members were going to see a doctor at the Ottawa Integrative Cancer Centre. I called the centre and made my case to be a patient that wouldn’t take up too much of Dr. Junek’s time. I just wanted to see her maybe 2 – 3 times a year. I just needed a practitioner who was willing to requisition blood work and review it with me as my family doctor had flat out refused.

Therapist

I found the most amazing psychotherapist, Robin Harnden in Ottawa. While dealing with a lot of anxiety attacks, panic and stress with the move from Toronto to Ottawa. I was able to process through my mind thoughts and find some peace in what I was experiencing.

Acupuncturist

I’ve seen 2 different practitioners since moving. I thought I had found one I loved but she ended up closing her practice while dealing with a health issue so I’m back on the market for one.

Naturopath

I haven’t needed one since my functional medicine doctor was able to play this role. I believe they are one of the most important health care team members so I’ll search for a new one if I need a practitioner while my functional doctor is on mat leave.

What other practitioners do you love having on your team?

Three Year MS Anniversary

My 3-year MS anniversary was December 2nd and I almost forgot. I actually thought it was December 4th!

I had this blog post all ready to go for Monday and as I sat down to write it on the weekend I looked up other MS Anniversary posts on my blog and the first one was all I could find.

The fact that I almost forgot this year’s and didn’t “celebrate” last year’s with a blog post is actually amazing. This means I’m no longer living in the past. I’m not tracking the days to an Anniversary date where I found out I have a new health sidekick in life. I’m no longer focusing on “what happened to me” but living in the present-day instead. I’m creating and living a life that fills me up. Where I feel vital and healthy and am focusing on that instead of just a diagnosis moment in time.

I tried to find my 2-year Anniversary post on the blog and I didn’t even post last year!

Most days I don’t even remember I live with this sidekick.

When I posted “Can I Say my MS is in Remission?” I didn’t really know what remission would look like? What does it look like to have constant health and vitality? Does it look like consistent optimization and healthy habits? Does it look like forgetting the diagnosis date?

I believe vitality in part is not dwelling on the past and not living with health diagnosis defining our every day lives. And for me, forgetting my diagnosis anniversary date was an amazing feeling.

Here’s to not dwelling on a diagnosis and celebrating finding vitality and constantly optimizing it.

Can I Say My MS Is In Remission?

I’ve been feeling all the feels since my last annual MS Clinic appointment and needed to process them. I wasn’t sure what I wanted to share publicly with the blogging world but this blog is my outlet. This blog is my journal and how I express myself. My writing is my creative output and it fills me up.

I’ve also publicly shared my journey living with MS from my diagnosis to how I’m taking care of myself so it’s only fitting that I announce to the rooftop. That My MS is In Remission!!!

Cue Excited Baby Photo…

Ok, so first off I was scared to actually use the word remission. I only ever hear it used around cancer patients. So I, of course, used my trusty Google engine to look up the definition. Was it applicable to me?

Remission:

A temporary recovery? Hmmm…As I’m well aware, MS just doesn’t “go away”. As many resources will tell you there is no cure for the

As I’m well aware, MS just doesn’t “go away”. As many resources will tell you there is no cure for the autoimmune disease. However, if my annual MRIs do not show the progression of the disease, I have zero disability presenting itself and I have minimal symptoms (that are usually only brought on by workouts done in the heat) I am proudly claiming and exclaiming that my sidekick is in remission. Hell yes, it’s a diminution of the seriousness of the disease and I’m recovered enough that I’m ready to not let it define me.

Which I said I didn’t want to do but inadvertently did anyways by calling myself an MS Warrior in every single social media bio.

Ok so how do I know that I’m in remission? My MS is tracked on an annual basis by an MRI scan. I’ve only “officially” had the disease since 2014 but during the first year, it was being tracked every 6 months and then it moved to annually. This past March, I presented myself at the Ottawa Hospital as scheduled for the annual MRI. Stripped down to my skivvies, donned the ever flattering hospital gown, removed all earrings, hippie bracelets and necklaces (usually a mala) and jumped up on the MRI bed like a seasoned pro. When given instructions, about how not to move, I just nodded and said “Yup I’m aware” as I’ve done it many a time.

I had a pretty good feeling that there would be one or two new lesions in my brain due to my inability to process stress very well this year and they have consistently shown up when I’m not fully taking care of myself and how I manage stress in my life.  However, the brain lesions are asymptomatic for me. I’ve asked many neurologists based on their location what could they affect in the future and I’ve been told they don’t know. The one on my spine which caused the initial symptoms at the time of diagnosis and cause symptoms when I overheat (based on where the myelin sheath was eaten away) actually “disappeared” a few years ago. Which means I’m doing well in reducing inflammation in my body so that the lesion no longer shows up on an MRI. A few months later, June rolls around, my MS clinic appointment shows up on my calendar, I ask Mike to come with me and we head into the clinic together.

My Ottawa neurologist: “You have 2 new lesions but one from last year’s MRI has disappeared”

I look at Mike, Mike looks at me. After the appointment we giggled, 2 minus 1 = 1 so I only have 1 new lesion 😉 MS math 🙂

After a neurological examination, lots of questions on my health care routine, how I’m feeling and any new symptoms (which I don’t have) so then my doctor says:

“So I don’t think we need to monitor you anymore. You seem very stable and based on the MRIs do you think you’ll change the way you’re taking care of yourself?”

I paused for less than a second.

“No. My healthcare routine is really good and I’m continually optimizing it with my alternative health care team.”

“Alright, then I suggest we don’t monitor you anymore with MRIs or appointments at the clinic. If anything changes, of course, please get in contact with us but it looks and sounds like you’re doing very well.”

Mike and I left and I felt torn. That’s it? That’s all. I’m free to go into the world without a conventional medicine practitioner looking over me. But then when I think about it. The only course of treatment that said neurologist has for me is pharmaceuticals which I’ve refused based on low efficacy and multiple negative side effects. I wanted to prove that I could take care of myself naturally and technically I just did. I guess, what did I expect? A pat on the back. A “You did good kid. It looks like you figured out how to live with MS and thrive in the process. Would you like to share your secrets with the rest of my patients so I can have the same outcome?”

I guess that was a little too much wishful thinking.

But if they aren’t worried about me, why am I so worried about not getting monitoring. I don’t need it. I’ve figured out the building blocks to my health. I’m a forever student of optimizing my health. I consistently ensure I’m compliant with my health care and voila. I will live a life of remission from MS. It’s my sidekick still just a way more silent one that I don’t need to shout from the rooftops that I’m battling. Sorry MS. I won this battle. You can hang out as my reminder that I can always take better care of myself. But I don’t need to Warrior against you.

So I’ve removed MS Warrior from my bios. You’ll still be able to read about my journey living with MS. I just won’t be broadcast that I live with this disease. Instead, I’m just gonna go out and live as Robyn instead.