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Category Archives: MS

Book Review: When The Body Says No

3 / 1 / 1611 / 3 / 21

Synopsis:

In this accessible and groundbreaking book — filled with the moving stories of real people — medical doctor and bestselling author of Scattered Minds, Gabor MatĂ©, shows that emotion and psychological stress play a powerful role in the onset of chronic illness.

Western medicine achieves spectacular triumphs when dealing with acute conditions such as fractured bones or life-threatening infections. It is less successful against ailments not susceptible to the quick ministrations of scalpel, antibiotic or miracle drug. Trained to consider mind and body separately, physicians are often helpless in arresting the advance of most of the chronic diseases, such as breast cancer, rheumatoid arthritis, Crohn’s disease, multiple sclerosis, fibromyalgia, and even Alzheimer’s disease.

Gabor Maté has found that in all of these chronic conditions, there is a common thread: people afflicted by these diseases have led lives of excessive stress, often invisible to the individuals themselves. From an early age, many of us develop a psychological coping style that keeps us out of touch with the signs of stress. So-called negative emotions, particularly anger, are suppressed. Dr. Maté writes with great conviction that knowledge of how stress and disease are connected is essential to prevent illness in the first place, or to facilitate healing.

When the Body Says No is an impressive contribution to current research on the physiological connection between life’s stresses and emotions and the body systems governing nerves, immune apparatus and hormones. With great compassion and erudition, Gabor MatĂ© demystifies medical science and, as he did in Scattered Minds, invites us all to be our own health advocates.

My Thoughts:

This book BLEW MY MIND. I knew that I had to reduce my stress after being diagnosed with MS but I didn’t really grasp how much. I thought stress reduction was part of a holistic health treatment and not something I needed to dive into to understand how it could be/have been a contributing factor to the development of the disease.

This time last year I was inspired to look at why I had/have the need to be an overachiever and do a lot of things by my Naturopath. She asked me “Why Do You Need To Be SuperWoman?” That question inspired the blog post Stop The Glorification of Doing Things. After that appointment, she recommended I pick up this book. So there it sat on my Kobo for over a year until I was ready to pick it up. I hadn’t really truly dived into how stress could have led to the development of my auto-immune sidekick and how it is creating chronic illness in our society and the world at large. After I read this book my mind was opened up to a new world of research. Here are some quotes that just hit me as I read them:

“When people describe themselves as being stressed, they usually mean the nervous agitation they experience under excessive demands – most commonly in the areas of work, family, relationships, finance or health. But sensations of nervous tension do not define stress – nor, strictly speaking are they always perceived when people are stressed. 

Stress occurs in the absence of capacity to feel our emotions, the ability to express our emotions effectively, the facility to distinguish between psychological reactions, and the awareness of genuine needs that require satisfaction rather than repression for gaining acceptance of others. This leads to the disruption of homeostasis. Chronic disruption results in ill health.

The idea that psychological stress increases the risk for MS is not new. The French Neurologist Jean-Martin Charcot was first to give a full clinical description of MS. Patients, he reported in a lecture in 1868, connect “long-continued grief or vexation” with the onset of symptoms. 

Excessive emotional involvement with a parent, a lack of psychological independence, an overwhelming need for love and affection, and the inability to feel or express anger has long been identified by medical observers as possible factors in the natural development of the disease. 

“before the onset of symptoms… patients experience traumatic life events that had threatened their ‘security system'”

“The common characteristic is the gradual realization of the inability to cope with a difficult situation, provoking feelings of inadequacy or failure.”

A systems model recognizes that many processes and factors work together in the formation of disease or in the creation of health. 

The potential for wholeness, for health, resides in all of us, as does the potential for illness and disharmony. The disease is disharmony. It is an expression of an internal disharmony. The first step in retracing our way to health is to abandon our attachment to what is called positive thinking. In order to heal, it is essential to gather the strength to think negatively. Negative thinking is not a doleful, pessimistic view that masquerades as “realism”. Rather, it is a willingness to consider what is not working? What is my body saying no to? Without these questions, the stresses responsible for our lack of balance will remain hidden. 

Holy Crap.

If you’ve been following my blog for a while you know I called off my wedding in 2012 and left a toxic relationship. But the thing is… I allowed myself to be in a toxic relationship. I invited this man into my home and my life. I tried to fix a difficult situation until I finally had enough and ended it. And from there I’ve worked on healing myself on a journey of self-care and self-love. I’m not blaming myself or getting mad at myself. I’m just observing this new knowledge.

I am in no way blaming the stress I experienced from the relationship, calling off my wedding, or leaving the relationship for the reason why I was diagnosed with MS. However, I do believe the way I managed the stress is one of the contributing factors to a perfect storm allowing my body to get confused and attack itself. I also believe my need to achieve is also contributing to my disharmony. I didn’t put any quotes about this part of the book above but I urge you to read the book yourself and discover what speaks to you most.

What I’m learning in my healthy journey is that there really isn’t any one single factor that causes MS. I do believe the psychology of how I’ve handled stress and my need to be an overachiever are things I can recognize, deal with, understand, and move forward with to truly take care of myself to my utmost ability. I am embracing the power of negative thinking (what isn’t serving me or hasn’t served me) vs. just positive, sweep it under the rug way of thinking. That clearly hasn’t served me very well. I can always grow and learn and am grateful for the opportunity to do so.

Last week on Periscope I came to the realization that stress & my previous relationship could be a contributing factor to my sidekick. After finishing this book, I reached out to my former therapist and will be returning to therapy to truly understand how psychology, past relationships, how I view relationships, how I deal with stress and how I deal with emotions and how my need to achieve are affecting me so I can learn from my past, be present in my present and continue to move towards a healthy, positive future. MS you really are teaching me to be my best self.

Buy the eBook on Kobo

Buy the eBook on Amazon.com (US) or Amazon.ca (CA)

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The not so glamorous side of MS; bladder voiding

2 / 24 / 166 / 7 / 22

I was debating sharing this post. Because really who wants to share their bladder problems with the whole wide world. But as always, if my journey and what I’m working on with my health can provide ideas on how you might manage your journey then the blog post has a place on this site.

Pee Blog Image

Since my diagnosis with MS, I’ve dealt with 2 urinary tract infections that have led to a kidney infection both times. Urinary tract infections (UTIs) no longer feel like they used to. I don’t really have the burning sensation while peeing or itchy symptoms so when I got one last year I didn’t realize what it was until it had gone into my kidneys. My only symptom was at night when I felt like I had to pee, I’d go to the washroom and nothing would happen. I’d get back into bed and feel like I had to pee maybe 5 mins later, another trip to the washroom, again nothing. Ok back to bed, just relax and go to sleep and then 5 mins later another trip to the throne and finally some action. It was the most frustrating thing but I didn’t think it was an infection. I mentioned it to my doctor but it was so soon after my diagnosis we were busy looking after other facets of my health first. Finally, I was stopped in my tracks with unbelievable pain lower back pain and fever which resulted in a quick trip to a walk-in clinic and a week-long antibiotic treatment. After the pain continued I went to my doctor, gave another urine sample, found the infection still to be festering and another stronger antibiotic treatment was given. Problem solved, infection killed, continue on my merry little way to rebuild my gut bacteria after taking antibiotics.

My bladder problems then really started to surface around the summer of 2015. I was mentioning to friends that sharing a tent camping with me or a room on a race weekend wouldn’t be fun because I usually get up once or twice a night to pee. They looked at me in shock and said that was not normal. I didn’t even realize this had been going on for such a long time in my life that it became normal too me.

I went in to see my doctor and we decided to do a pelvic ultrasound. I showed up with a full bladder, was given an abdominal and internal ultrasound, and was then asked to void my bladder and the ultrasound was repeated. This is when we found that I retain around 64 mL of urine even though I felt like I had finished. Which is a large amount but probably a reason why I contracted and am still contracting UTIs.

From there I googled MS bladder voiding problems to see if this was linked to my sidekick. I found this article on the MS National Society webpage. I was kind of excited to find it because I realized I wasn’t alone in these symptoms. I don’t really go to the MS community with symptoms because mine have been so mild and I know what causes them from overheating while working out.

And then my next UTI came around in January of 2016. This time around I tried to treat it completely naturally for a few months. Unfortunately, it went into my kidneys again so back on antibiotics I go. Thankfully I’m not completely stubborn about conventional medicine and will do what it takes to take care of myself.

Have To Pee

There are 6 things I’m doing to take care of myself with this infection and moving forward.

  1. I am on a course of Macrobid antibiotics, prescribed by my family doctor, so I can clear out the infection. I’ll be high-dosing probiotics at the same time and after this round of antibiotics to ensure my gut health does not get entirely wiped out.
  2. I am taking echinacea and cranberry complex by MediHerb, prescribed by my Naturopath so that I can fight whatever bacteria wants to fester in my bladder when it can’t void and potentially avoid infections in the future. I was taking both these supplements prior to needing antibiotics and will continue. I do believe they work on UTIs but since I can’t void my bladder completely I know I’m dealing with a more complicated situation.
  3. Planned bladder voiding. That’s right folks I’ve got a new alarm on my phone that goes off every 2 hours from 5 am to 9 pm to remind me to pee.
  4. Making bladder voiding relaxing. You may wonder why I bring my phone to the bathroom. Part of planned bladder voiding is sitting on the throne, relaxing and really allowing the bladder time to relax and void. Gotta keep myself entertained somehow. Maybe I’ll start carrying my Kobo in with me. If any co-workers read this you’ll know what’s up 🙂
  5. I already avoid alcohol and spicy foods but it is recommended to decrease caffeine intake as well to avoid future UTIs. My one cup of coffee per day is potentially at risk. THE HORROR 🙂 I can’t give it up quite yet.
  6. Pelvic floor therapy. Usually, this is done for older patients or women after childbirth to retrain their pelvic floor muscles to contract. I have the opposite problem. After going to several sessions at Toronto Physiotherapy before the new year my therapist discovered that I have the opposite problem and can’t actually relax my pelvic floor muscles which may also be contributing to the incomplete bladder voiding. I will re-start weekly sessions to re-educate my pelvic floor muscles to relax as the bladder contracts.

So realistically there are numerous reasons why my bladder may not be emptying. Although I love to try and understand why it’s happening I also know that sometimes the answers aren’t there but the many solutions are there to be implemented and tried until success.

It’s not glamorous but it’s my reality and for others. Here’s to future happy bladders.

Disclaimer: I am not a doctor. I do not claim to cure any cause, condition or disease. I do not provide medical aid for the purpose of health or disease and claim to be a doctor. I just provide what I’m doing to treat myself. 

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What I Wish I Had Proactively Done Before An MS Diagnosis

2 / 18 / 166 / 7 / 22

As I do research on auto-immune diseases and contributing factors that might have led to my diagnosis with MS I’m overwhelmed with thoughts of what if I had done more before being diagnosed.

What I’m learning is that there are so many different factors that could have been one of the many reasons why my body decided it wanted to live with MS as a sidekick. There is no research that proves what causes MS but there is information available on what could be contributing factors.

For me I’m starting to piece together things like my vitamin D deficiency at the time of diagnosis, MS runs in my family (my father has it), I’ve lived with IBS the majority of my life (leaky gut) and I’ve been highly stressed and an overachiever most of my life (currently reading When The Body Says No). While I’m not saying I believe any of these things are a cause, I am starting to believe that combined they could all be contributing factors or what I’m calling a perfect recipe for the immune system to be overwhelmed.

From there it’s only human to ask yourself questions like; “What if I had just taken care of myself better” or “Maybe I never would have gotten MS if I had only…” or “What if I had simply reduced my stress and taken Vitamin D”. There are so many “what ifs” it’s a dangerous game to play. So I’m stopping.

Thankfully my quality of life right now is really ok. I now have a sidekick that has made me realize I need to take the utmost care in myself. I believe this is a positive thing that has happened in my life. However, I still have thoughts about what I wish I could have proactively done earlier in my life. But instead of focusing on the past I now get the chance to implement them in the present day to have the best life possible. I only look to the past to live in the present fully and more healthy than before. This allows me to be confident and avoid anxiety over an unknown or unhealthy future.

Here are the things I personally wish I had done:

  1. Focused on decreasing my stress
  2. Taken Vitamin D supplements consistently
  3. Become more aware of how many toxins I was ingesting or absorbing
  4. Been less hard on me as an overachiever and perfectionist
  5. Optimized supplements to blood tests more often
  6. Stayed out of stressful relationships
  7. Dealt with anxiety faster

But wishing won’t get me anywhere, only action. So today I am:

  1. Meditating daily
  2. Taking nightly Epsom salt & essential oil baths
  3. Consistently taking daily supplements
  4. Eating an auto-immune paleo-based diet based on the Wahl’s Protocol
  5. Reducing the number of toxins in my food, beauty and household products,
  6. I left a toxic relationship and learned self-love
  7. Only investing in positive, uplifting relationships (friendships & romantic)
  8. Listening to my gut to avoid anxiety
  9. Getting blood tests done every 3 months to optimize my supplementation plan
  10. Reducing stress at work by taking breaks to go for walks and taking deep breathes when facing conflicts
  11. Really truly understand that I choose how I react to stress and that I choose my own happiness

Here’s to being in charge of our health. The future is bright when we know it’s in our power to take care of ourselves better so we can lead a happy & healthy life.

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Combatting The Overwhelm & Healthy Apple Pie

1 / 25 / 165 / 25 / 18

There are some days where I feel like I could take over the world and then other days I want to curl up on my couch, cry for no apparent reason and just have a pity party. The later happens once in a blue moon. Thankfully! However, I’m learning to pinpoint why it happens and how to knock it clean out of the ballpark (that was really weird of me to use a sports analogy from a sport I’m not a fan of). Here’s how I’m learning to combat what I’m simply calling The Overwhelm.

I do a lot on a daily basis in terms of healthy habits so that my immune system is always boosted, decides not to attack itself for the day with the lovely sidekick called MS that I live with and function at optimal levels so I can continue to challenge myself fitness wise. The minute I decide to sacrifice sleep or have a new symptom that I’m learning to treat or work/life stress builds up in the slightest and I find myself combatting The Overwhelm.

I’m currently tackling fun MS symptoms like digestion health and bladder problems (I won’t get into details until I’ve got it figured out) but it means I have to add more things to my daily regime. This threw me into a “stress whirlwind” the other day and I honestly started whining the following statements. “I do so much already why do I have to do more things to take care of myself”, “I thought I had MS figured out” and “everything was going so well why more?”

After I had my pity party which included whining to a friend, full on pouts and a few tears I Alpha Femaled up (yes it’s now a verb) and told myself to just figure it out. My friend recommended actually writing out all my health habits so I have a visual reference. Everything is in my head but just the act of putting it on paper took the stress off my brain to have to remember. So now my Healthy Habits lives on my fridge so I can start the day off reminding myself of everything I do to have a healthy day.

Daily Health Habits

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Olistika – Aromatherapy, Reflexology & Reiki

12 / 16 / 155 / 25 / 18

Disclaimer: I received a free treatment as part of a press tour for the studio

Are you interested in wellness? True holistic wellness? If you answered yes to both of those questions than read on. If the hippie side of holistic health is too woo woo for you you can close out of this blog down and save yourself some time 😉

There is a new concept wellness centre in Toronto called Olistika, which is a spin on the word holistic with an Italian flare.

Olistika Banner Logo

Olistika uses non-invasive techniques and treatments that completely balances and energizes individuals using a combination of Aromatherapy, Reflexology and Reiki. The founder Filippo Conte wants to support his patients overall wellbeing. He does this by through a trifecta of treatments and pure organic vegan products.

Filippo Conte is described as a powerful healer who empowers those around him to take control of their wellbeing by taking loving positive action and using natural time honoured techniques to balance and heal.

Filippo’s qualifications and practice fully comply with the requirements and standards of Canada’s leading Reflexology, Aromatherapy and Reiki organizations and the City of Toronto, and allow him to use the following designations. He is a Licensed Holistic Practitioner, City of Toronto, a Reiki Master Teacher Registered Practitioner (RP-ˇCRA), Canadian Reiki Association, a Registered Reflexology Practitioner (RRPr), Reflexology Registration Council of Ontario and a Certified Aromatologist Professional (CAP) and Canadian Federation of Aroma therapists.

Filippo Conte

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About Robyn!

I help to empower you with healthy habits
- By using dƍTERRA Essential Oils
- Sharing my Multiple Sclerosis journey
- Show you how to thrive with an autoimmune sidekick

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To the other moms who need to hear it, you are a g To the other moms who need to hear it, you are a good mom.
Feeling tired and depressed post partum is not nor Feeling tired and depressed post partum is not normal. I know something was off after giving birth to twins so I sought help. Happy to chat if you need recommendations!
This was our first trip to the Rockies. We started This was our first trip to the Rockies. We started dating January 1, I left Toronto and moved to Ottawa and right in with Mike on April 1 and then we travelled out to the Rockies in September of that year. A year later we’d get engaged. 

Now we find ourselves 8 years later, married, with twins and have gone through some really hard times. But we have always fought for each other. We have always fought to communicate. We have always fought to understand, learn, forgive, support and love unconditionally. I would go through all our hard times again to get to where we are today.
What 2 essential oils are in your laundry room?
⠀⠀⠀⠀⠀⠀⠀⠀⠀
Mine are Breathe & Wild Orange. After the drying cycle is done I'll pop 3 drops of each on 3 dryer balls and then pop them into the dryer for 10 mins. Clothes smell fresh and bright.
Going back in the video archives looking at simple Going back in the video archives looking at simple videos of @mike_rtq playing with our twins.

Our neighbours always say they loving watching the twins grow up outside their windows. And I pinch myself at how fast it’s happening. We are truly blessed to be their parents. My heart is constantly living outside my chest.
Heard this song and had to go back in the archives Heard this song and had to go back in the archives for the day that @mike_rtq asked me to hike with him for the rest of our lives.
How many đŸŽ© do you wear? How many đŸŽ© do you wear?
PSA to the moms who are usually the ones taking am PSA to the moms who are usually the ones taking amazing candid photos of your kids and your spouse. 

Book the family photoshoot. And dare to ask for multiple shots with your kids and each kid because let’s be honest sometimes we are usually the ones behind the lens taking amazing pics of our kids with our spouse. But we don’t always get the same in return. 

So get the family photos for you😉
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